I can’t remember what it feels like to be able to eat what ever I liked with out repercussions from my body.
Living with any inflammatory bowel disease you learn how to fake it. I pretend I feel fine. I pretend I don’t have to run to the bathroom, or Yes! I would love to go out tonight, while internally I am all ready making up an excuse to get out of it. Don’t get me wrong, I love going places, its just most days, I would rather not. I would rather be at home. I am tired, I don’t feel well, and its just plain easier being home then some where. There are lots of physical reasons why, you just can’t tell by looking at me.
For me things really got to a breaking point in 2006, stomachaches, constipation, diarrhea, gas, bloating, constant abdominal pain and not being able to eat a normal meal with out feeling nauseous.
That was the first time I had even heard of IBS (Irritable Bowel Syndrome). It made complete sense, being such a taboo and private subject I never complained about irregularity, bloating or gas to any one. Not my parents growing up, or my husband now. I just kept it to myself, made excuses and quietly knew where every rest room was. But the pain kept growing, my doctor finally ordered a CT scan. I barley made it home from the scan. The pain was so bad. I got home, crawled in bed and called my husband who promptly came home and took me to the hospital. Luckily, since I had the scan done the doctor was able to diagnose me pretty quickly. Diverticulitis. I had heard of it, I had been searched the web for answers and and done symptom checker on WebMD constantly. But I never was sure it fit. I was admitted in the hospital for 4 days of complete bowel rest, IV fluids only.
That was the first of many hospital visits, doctor appointment, tests and scans. I completely changed the way I ate, and lived to keep my Diverticulitis at bay. For the most part it worked. In the mean time I started to have trouble with my gallbladder, ultimately having it removed. I felt better. Again. But I still struggled with occasional Diverticulitis flares.
In 2013 I was hospitalized again, and ended up in for a surgical consult. I had a colon resection in April of 2014 and after recovery I really did feel much better.
Unfortunately, that didn’t last as long as I would have wanted it to. Here we are again. In the summer of 2015 I started feeling some familiar symptoms, and seeing my Gastroenterologist more that we both wanted. He started treating me for again IBS, which I had kind of put out of my head when I was focusing on my Diverticular Disease. I again cleaned up my diet, even though it was worlds better then it had ever been. A few months later I tested negative for celiac, but positive for SIBO. 10 days on Rifaximin made me feel better, but now a month later I feel bad again. I am starting to wonder if I am having a re occurrence of Diverticulitis, IBS? Is my SIBO gone? Or something else?
This blog is dedicated for all of us who silently suffer with any IBD. Anyone searching for answers, or needing to talk. Lets share what has worked for us, and any other tips that we have found along the way.